Our Story
Steve and Kate Crawford were expecting their first daughter, when they were told at their 18 week ultrasound that the baby had a life threatening birth defect known as Congenital Diaphragmatic Hernia.Only half of babies born with this defect will live. After many ultrasounds, echocardiograms and fetl monitoring, the baby's outcome looked hopeful. Shannon Elizabeth Crawford was born January 16, 2007 at Magee-Women's Hospital and was transferred that same day to Children's Hospital of Pittsburgh. On January 17th, 2007, the couple found out their daughter also had a heart defect known as Hypoplastic Left Heart Syndrome. The combination was deadly and Shannon was given a 1% chance of surviving. On Janury 19th, 2007, it was decided that Shannon would not make it through any surgery, and prolonging life was not an option. Steve and Kate let their daughter pass quietly in their arms that night.
In June of 2007 the couple found out they were expecting again, only to miscarry their "Peanut Shelbe" in September. The couple was exhausted and felt hopeless at trying. To their amazement, they found out they were expecting once again in January of 2008, shortly after what would have been Shannon's first birthday. At the first ultrasound, the couple received the shock of their life - twins. In August of 2008, Kate delivered the twins girl 6 weeks premature. Grace Kathleen and Lily Anne spent two weeks in the NICU at Magee-Women's Hospital. Grace needed no extra support, she was monitored until her weight of 5lbs was met and she was released. Lily needed CPAP. She remained on a heart monitor after her arrival home for one month. Kate and Steve decided to add one more in May of 2009. At 7 weeks of pregnancy, Kate was put on bedrest for bleeding. She later found out she had two conditions, Placenta Previa and Placenta Increta. Kate gave birth to her son in early December of 2009, 7 weeks early. Stephen was intubated, suffered from jaundice, reflex and dropping heart rate. Stephen spent 19 days in the NICU and was realased right before Christmas. He joins his twins sisters at home, where they are all growing happy and healthy.
Kate knows what it is like to sit in a NICU and have nothing to do but stare. She was been through the best outcome and the worst. For her, the small things she was able to hold on to in the NICU continues to bring her much comfort. She always wished she had more to remember Shannon by and loves to be able to provide these items to parents. Project Sweet Pea holds a special place in her heart.